Autist artist?

Someone has come up with the theory that Janet Frame was autistic. Autism had barely been identified as a specific condition at the time Janet Frame was cleared of having a mental illness when she lived in the UK. I have read and appreciated most of her work. Just the other day I bought her newly published novel, Towards Another Summer, and look forward to reading it with pleasurable anticipation.

This new ‘diagnosis’ leaves me with mixed feelings and a number of questions. Firstly Janet Frame died in 2004 and can no longer answer for herself. Secondly shouldn’t her writing stand for itself? Should we forever analyse it and her in terms of what condition she had and not simply accept her writing for what it is, exceptional. Of course there should be no shame or stigma or different judgement attached to the work of many creative people who also have impairments and experience disability.

Does it matter whether she had a ‘condition’ or not. If she were ‘treated’ as the promoter of this theory in a medical journal suggests would her writing have been different, or as good? If she had not been labelled mentally ill, and undergone the searing experience of the primitive treatments she endured, her writing might have been entirely different. Would she have written as well, or indeed at all?

I also find myself asking why there is this need to label, to find explanation for behaviours or states of being, rather than accepting and celebrating the richness of the human condition and the consequential richness of world views. If she was autistic so what? How many other artists in different fields could be diagnosed with a variety of conditions, and what would be the point? Where might all this categorising lead us?

All of this is of course, mere speculation. Her writing stands firmly on its merits. She did not, thankfully, undergo a frontal lobotomy, and we are left today with the essential paradox of her life and work, for which we can be grateful, whether or not she was autistic.

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NZ trounces the opposition

No I’m not being ironic. Over the last few days the wailing and gnashing of teeth over the All Black defeat has pretty much drowned out everything else, certainly in the “talking” media.

But it has come to my attention that we are winning on a different and less celebrated front. (Thanks Matt!) While I cringe whenever I hear the word “special” applied in any shape or form to disability, I really want to give credit where it is due, and achievement is achievement no matter how you look at it. Our team at the Special Olympics are gathering up medals like there is no tomorrow! The latest medal count in Shanghai is 17 gold, 9 silver and 9 bronze (as at NZST 9am 9th Oct).

Well done team! Kiwis can still be winners after all!
Find out more at http://www.specialolympics.org.nz/ .

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Pretty Darn Frustrating!

Those of you who know that I am the wicked witch of the west when it comes to pdfs will no doubt find it amusing to imagine my consternation. I sent a report in a Word document for publication on a web site which I know to be infested with pdfs, only to discover it had been posted as a pdf! I completely forgot to ask them to publish in non-pdf format as well. And it has my name on it on their front page. Oh the shame of it!

For the uninitiated, pdfs, (portable document formats) are generally inaccessible to a number of disabled people, and a pain in the proverbial to a fair number of other people as well. You can find information about pdf pro’s and pitfalls and understand why these cause problems, if you don’t already.

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Shopping in Sydney

Just time for a quick shop before heading for the airport and home. This week has been successful on a number of counts, not least the shopping!

But this has been more than a shopping expedition in sunny Sydney. It has been very rewarding to be able to attend the Asia Pacific Forum of Human Rights Institutions (NHRIs) twelfth annual meeting, hosted by the Australian Human Rights and Equal Opportunity Commission. I particularly valued the opportunity to contribute to the panel on disability rights and the Convention on the rights of Persons with Disabilities (CRPD) and encouraging to find other institutions, often in really difficult circumstances, prepared to travel the road to disability rights. Spending time among human rights professionals who are passionate about what they do, and focused on the issues is a good recharge of the batteries. It doesn’t mean that everyone agrees on everything, but it does mean that everyone is focused on human rights.

Great to have the conference in the same hotel we stayed in. Terrific hospitality – I can peel prawns very quickly and easily after so much practice! It was lovely to be welcomed to Australia by the people of the land, and to be part of the smoking ceremony which meant that the evil spirits would leave and we would be accepted among the local people. This was followed by an evening of song and dance with a blend of ancient and modern which was quite breathtaking. The harbour cruise was spectacular, and warmer than it would be on the Wellington harbour even in the middle of summer.

Also I got to catch up with some people I really like and respect who I met in New York during the Convention negotiations. It’s good to keep the international networks alive.

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Filed under Disability Rights, Travel