Category Archives: Media

Engaging with disabled people 2

The UN Convention on the Rights of Persons with Disabilities (CRPD) says in:

Article 11 – Situations of risk and humanitarian emergencies

States Parties shall take, in accordance with their obligations under international law, including international humanitarian law and international human rights law, all necessary measures to ensure the protection and safety of persons with disabilities in situations of risk, including situations of armed conflict, humanitarian emergencies and the occurrence of natural disasters.

The CRPD, which New Zealand has ratified, is concerned with disabled people in times of civil emergency and conflict and the responsibility of the state towards them in these situations. Nowhere was this responsibility more apparent than in the Christchurch earthquakes and their aftermath. In such situations disabled people are in the same situation as everyone else but face particular problems of access in every sense, with disruption to their environment and the services they need.

They had difficulties navigating a changed and damaged environment, access to water and food and access to information, and for some access to personal care. Some had damage to their essential equipment.

But disabled people were not merely passive victims during the Christchurch earthquakes as the mainstream media would have us believe. They helped themselves and each other and the emergency services. For example Radio New Zealand’s One in Five told of a non-verbal wheelchair user giving up their shoes to a distressed tourist with cut feet. A disabled woman opened her accessible home to other disabled people.

Emergency services did their best of course in difficult circumstances. Mostly things worked fairly well, but there is always room for improvement, and for learning from experience. Many disability services were out of action in the first few days so the emergency and rescue services had to cope. In retrospect what could have been helpful?

I have been reflecting on the events and talking to people involved and have some suggestions. Here are the first of ten points for inclusive engagement

  • People within emergency and rescue services must know the community of disabled people. Building good relationships before the disaster will really help. It can’t be left to service providers who will have their own difficulties in the first instance
  • That means good planning in advance – planning for real inclusion in emergency preparedness and response
  • Listen to disabled people and their organisations before the disaster.
  • Know the difference between organisations “of” and “for” disabled people and how and why they differ
  • Don’t make assumptions about how disabled people might behave or react in particular circumstances.

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Engaging with disabled people

As recent events in Christchurch have shown it is not sensible to ignore sections of the community, assuming that they are someone else’s responsibility. Engaging with disabled people is critical because failure to do so creates significant risk. In the case of a disaster like the Christchurch earthquakes lack of engagement and appropriate communication by emergency services and planners can result in unnecessary suffering and even death.

Many people have choices about the way they engage with their local communities, central and local government, emergency and other organisations. Other people do not. They face significant barriers, and these barriers are frequently not taken into account when governments and other organisations engage with communities.

The numbers of people who face barriers may surprise you.

  • Older people are increasing in numbers. They are 13% of the population now and increasing in number with higher rate of disability as the population ages
  • 20% of the population have one or more disabilities
  • 40% of the working age population have poor literacy and 20% have English as a second language.

Together they are a sizable proportion of any community.

They are all citizens too with a rightful place in the community, the right to a voice, and the right to be heard, and the right to be included in rescue and recovery.

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Plain English Week

This week is plain English Week. Plain language adds value to accessibility and usability. Well written plain English is useful for everyone.

Plain English is also fine when talking about disability. If you don’t need to use long medical terms when referring to impairments and disability then don’t use them. Use plain English your audience will understand and find meaningful.

There is also too much jargon surrounding disability, and we’re all guilty at times. It is OK to say “Please explain what you mean!”

You can get involved by supporting Plain English Power for free. This excellent site has lots of information about using plain English every day and everywhere.

There is also some plain English pointers at AccEase.

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Victory for People First

Last year TV one’s Breakfast presenter Paul Henry made remarks that were offensive to disabled people, but in particular to members of People First, people with learning disabilities.  The resulting complaints process has vindicated their concern. The text of the statement broadcast by TV One is not an apology, and it doesn’t mention Paul Henry’s name. But the decision made by the Broadcasting Standards Authority is significant and worth reading in full.

It recognises that the denigration of Susan Boyle, while not harming her, did harm others, which is significant.

Here is the minimalist statement from Television New Zealand. (Paul Henry’s name is included in brackets.)

“Last year during ‘What’s In The Mags’, Breakfast screened comments about the singer Susan Boyle. The comments were made by a Breakfast presenter [Paul Henry] and concerned Ms Boyle’s intellectual disability.

TVNZ upheld viewers’ complaints that the comments breached the broadcasting standard requiring Good Taste and Decency. The presenter [Paul Henry] also made a public statement saying he had not intended to cause offence.

Eleven complainants were not satisfied with the action taken by TVNZ, and referred their complaints to the Broadcasting Standards Authority.

The Authority agreed with the complainants, finding that TVNZ had taken insufficient action to remedy the breach of standards. It noted that no statement or apology had been made on the Breakfast programme, and that the presenter’s [Paul Henry's] public statement was inconsistent with his comments and behaviour in the item.

The Authority said that to mock and belittle a person on account of her intellectual disability was contrary to common decency and a clear breach of the Good Taste and Decency standard.

The Authority ordered Television New Zealand to broadcast this statement.”

Thanks to the Human Rights Commission for distributing the text of the statement in their disability newsletter Manahau. (Manahau is well worth the free subscription, particularly if you want to keep up to date on human rights and disability.)

Mediawatch on Radio NZ took the case seriously enough to discuss implications of the case in depth on its Sunday morning programme. (August 1)

The action taken by disabled people and their supporters using complaints tools to stand up for their rights is a practical example of rights in action. They have won, and in winning have made a difference for everyone.

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